My husband and I have suffered with fibromylagia for over 14 years. My husband gets Social security disability income. After experiencing total body pain over the past 2 weeks, so painful it hurt to walk even BRUSHING my hair. Pain from my scalp to my toes and ALL in between, I knew something was terribly wrong. My current treatment took the edge off allowing me to work, until now. I made an appointment with my primary doctor, he told me what he thought was happening to me. Polymyalgia Rheumatica and referred me to a Rheumatologist. Confirmed this morning, Polymyalgia Rheumatica. Last Thursday received a different diagnosis for foot pain with an unknown calcification that be felt by pinching both the top and bottom of my left foot between my toes. My podiatrist wanted to confirm what it is before making a decision for a 7th surgery on my left foot. Not cancerous, Yay!! However, surgery as soon as possible to decrease pain within two weeks post surgery, Yay!! The past 13 years of my life I have only worked 5-6 months per year. All but 2.5 of the years due to surgeries 3 knee replacements, emergency gall bladder removal on a Sunday morning after dealing with severe stomach pain, thyroid removal, tonsilectomy, double sided left ankle fracture just over a year from my 1st knee replacement and hence the reason for a 2nd replacement of the first, the right knee approximately 2 years after the 2nd left knee, hysterectomy, plantar fascia both feet, plantar fascia stumps both feet (highly abnormal for both feet), tarsal tunnel both feet, this year Ulnar nerve release both arms with two separate surgeries, my 7th left foot surgery, 3 surgeries this year, and the list goes on with other medical issues mostly from 4 rear end accidents from the rear AND fully stopped at a red lights. We both receive numerous trigger point, corticosteroid injections and epidural injections yearly, 2 nerve ablations, 1 for neck, 1 for lower back once yearly. Taking “Built like a Mack truck or Built Ford Strong/Tough for those who remember that commercial from way back when to another level or for the younger crowd, Built Ford Strong or the 2021 and onward Chevy Silverado 1500 with the Multii Flex tailgate, it lets down, the dog and many onlookers mouth drops” you know the commercial. I love the cars and trucks. Later, I’ll tell you a couple short stories about a much younger me and my late father. I must put that in my rolling notes until the real memory slowly restores itself. I must keep my word no matter the cost. My late parents and husband has said so many times during my lifetime still hearing it today at least once a week as we both help people with their emotional and physical wounds by delivering an ear and our love to anyone who expresses the need, The only thing I have left that CAN BE removed is my appendix-everything else is gone. I have surgical scars on almost every region of my body except my head, face, and neck. From the base of my neck to my feet there are scars. My skin keloid post surgery so every scar with the exception of the last two due to under the skin stitching, as well as, outer stitches. Just giving you a good glimpse of my life over the past 13 years of my life not even touching my husband’s. His disability started with a 2012 car accident caused by a drunk driver in a rental car, with speed clocked by the vehicle rear cameras beyond 80 MPH. My husband almost died that night. Short term memory loss, severe back and neck injury, 2 months after returning to work from his first knee replacement. Guess what? Just found out that he needs a 2nd on the same knee as his first, after being involved in another car accident from a hypoglycemic episode, crashing into the barrier on the onramp of the highway going 60+ MPH as other drivers called the police and they were actually following after reports of seemed like drunk driving and swiping another vehicle in the process. The second time he flirted with death. I remember that night, a monsoon storm in February of 2020, rain in sheets, visibility nearly zero, 2 hours after he should have been home, me calling, our daughter calling, my mother in law calling with no answer risking my own life, I had to go retrace his path. Calling repeatedly on Hands off calling, of course, an unknown voice finally asks if I’m his wife and my stomach dropped, tears running. All I wanted to know was if he was alive, wanted to know nothing else. I had flagged down an officer to lead me to him as I had no idea where the hospital was. Tears rolled as the officer trekked in front of me with the siren blasting in the darkness and lights blurring from tears and visibility. Just a tad of our lives so you have a full understanding as to where we have been until now. All we need is enough help to tide us over until I’m able to submit my application for retirement in February 2023.
We can’t afford a week without pay as I’m in process of getting approved for long term disability from work. Definitely can’t afford the 40% paycut once the long term disability is approved. Just need some assistance to get us through until I can apply for retirement February 2023. I cant apply for retirement until the end of January 2023 and 1st payout will be in March 2023 but I can get the remainder of my 401K is what I confirmed and I don’t want to be in the position to have to make the choice between hunger or homelessness. Either of those spectrums would definitely kill us. I’ve checked our local Department of Economic Services, checked with my employer in hopes to obtain some help, my 401K has the very minimum amount in it to keep it going (85% covered previous and recent medical costs, previous by weeks while awaiting leave of absence approvals), Social security spousal benefits (I’m too young to collect). I called every resource I could think of. This morning I felt like I was near delirium. I called my HR department for emergency counseling services crying uncontrollably could barely talk. I’m a planner so all the unknowns and not knowing what to do, where to start, knowing I’ve exhausted all the options I knew of at that moment and the diagnosis just a lot ALL at once. A most horrific time. I wanted to tell our 100% TRUE story and plead for assistance on a reputable website. Not a go fund me page being a Senior Fraud Specialist I know there’s always a person scheming and plotting to rip off an innocent person who wants to help. I was given the information from 211 that I obtained from AARP referred by the counselor at the top of my day. I honestly can’t remember if I can disclose the amount so I won’t as I can’t mess the possibility of receiving help. I apologize beforehand for any grammatical/punctuative errors as I’m still a bit shaken with the unknown and my newest diagnosis. Please forgive me, my normal writing skills are professional to service our clients in mitigating their losses, our losses, and assist them as best as we can to move forward. Today has been the roughest day I’ve ever had to endure in my life not making small change of the other incidents described thus far, just saying we overcame with grace never asking anyone for help outside of family and benefits from work. Thus another important reason why I chose this platform to cry out the tears that I couldn’t cry out because my eyes are so puffy and painful due to more than 2 weeks of crying myself to sleep most of those nights and from the lack of sleep due to pain. If you have a little bit of spare time it maybe more helpful to Google my past & present plural diagnoses that will give you an idea of what we’ve endured thus far.
This is my 1st time having these feelings at an all time highest intensity and pain that made my cry more than a few days coupled with the unknown seasoned with fear, NO game plan to secure our success in overcoming this, as well as, putting our minds at ease, and fully concentrating on recovery and healing.
As my memory returns to a halfway decent state and let my mind recharge. More edits to come my 2hands friends.
Thank you for listening to our cries, pains, and plead.
Thank you even more for considering helping us and for those that will.
Thank you for looking beyond the constant ANDs, grammatical, punctuative, repetative lines, coupled with spacing errors.I tried my hardest to cut and paste but it didn’t work properly since I’ve damaged my phone and tablet for the 2nd time during my pre and post surgeries for the Ulnar nerve release. I hope it’s at least understandable. I’ve been all over the place, my deep apologies for any headaches I’ve caused any of my 2hands friends yesterday or today! Straight from my heart.
I’ve already edited over three times already, lost count, cannot remember beyond 3.
Later, I’ll tell you a couple short stories about a much younger me and my late father. I must put that in my rolling notes until the real memory slowly restores itself. I have a page of notes longer than this post because, I must keep my word if at all possible. My late parents and my husband as well as, myself have said numerous times during my lifetime up till and INCLUDING to most people I’ve spoken to today I remember that due to the post responses I received by the end of my calls yesterday abd several times per week–as we both help people with their emotional and physical wounds by delivering a listening ear, our true display of heartfelt concern, and our love towards anyone who expresses or anyone we feel has the need to be encouraged or just a glimmer of hope, “YOUR WORD IS ONLY AS GOOD AS YOUR BOND at some point of the initial or follow up conversations, I’m sure that any of our 3 grown children and 3 of our 6 grandkids, the oldest turning 18 next month (graduating next year Mayish), the youngest 1 a year old–Man, we’re getting old! LOL can state it, VERBATIM!
I have a migraine headache with the extra throbbing effects so its time to take my bedtime meds at midnight AND EAT finally. For those who viewed my initial post around 3PM yesterday—I know, I know wrap it up pla—eeeeease…LOL.
I know one of my 1st calls tomorrow is to ensure that I can post the updates as I can’t mess up this beautiful opportunity for help. We have to get some sleep throughout the nights.
This is my 1st time having these feelings at an all time highest intensity topped with some MAJOR pain that made my cry more than a few days coupled with the unknown, no game plan to secure our success in overcoming this as well, putting our minds at ease, and concentrating on recovery and healing only.
As my memory returns to a halfway decent state and letting you know how your contributions are helping us, I’ll be doing plenty of edits to let you know how we’re doing. Much love and gratefulness to all!
Have a most wonderful day as of right now AND week!
Well, my 2 hands friends.
I was in the hospital on Wednesday. I came home, Thursday afternoon.
The extreme pain, I have Polymyalgia Rheumatica diagnosed on Monday
and the stress of the pain and high demand of changes at work changing from 2 different functions per day to 5 different functions per day is way too much. Already experiencing heavy duty daily pain with Fibromyalgia, Lymphedema, Back, Arm & Neck Pain from Several Car Accidents, Ankle Pain from breaking it years ago, Polymyalgia Rheumatica is a whole other extreme. I had a serious manic episode. It was the most frightening thing that has ever happened to me. I know I scared my husband. He was cool and calm.